One thing I do not do is share my story for attention! I do share my story to raise awareness ! Also if someone like me happens upon it!
When Lupus attacks our major organs. Our diagnosis is changed to SlE Lupus with organ involvement!
This becomes really scary fast! I like to explain it like I am allergic to myself!
Most Lupus fighters will down play their symptoms so their loved ones will not worry ! The last thing we want to see on some one we loves face is fear of loosing us.
Lupus is a scary unpredictable disease! We never know what is coming next.
My lupus has effected my heart and lungs. My hear that has been effected the worse. I recently spent 23 days in the hospital and was diagnosed with constrictive pericarditis of the heart. The only cure is a very dangerous surgery. Mine has not reached the point of needing surgery!
We pray it never does!
I was diagnosed this week with collagen vascular disease it causes inflammation of nearby joints. Pedal Edema
which causes lots of swelling mine is due to my heart! It landed me a 2 night stay in the hospital this week! along with 2 emergency room visits.
aren't my feet lovely!
this was actually after two shots of lasix through IV!
Remember our immune systems are compromised we can not fight germs the way you do! Please if your sick don't visit, kiss, or hug a lupie!
Lupus is not only hard on us but or families. They have to pick up and do things we used to do! Like in my case laundry, heavy house cleaning, I am unable to drive, and depending on the day this list can grow really fast.
For them they are forever wondering and worried about me. You family won't leave me alone for long periods of times. I need a walker and was wheelchair now... Their life as they knew it is forever changed.
I can't help but feel guilty about it even though I didn't choose it.
So I encourage you to check out this website and learn more about lupus!
Lupus Foundation of America
May 17 is wear purple day to support some one you love who has lupus! It's to help raise awareness and fight for a cure!
I hope you will stand with me! I will be wearing our pleasure that day for me!
Help us fight for another day! I take 17 medications a day to control my lupus! Benlysta is on of them it's the only drug of it's kind made specifically for Lupus and that has been 50 years ago.
This just apart of what we go through! There are more days than not I talk my self out of bed!
Thank you for stopping by!
~Prayerfully Yours Shellie~